Talking about the end of life is never easy, but for many families it brings a sense of comfort to know that a loved one’s wishes are understood. Many people say that, when the time comes, they would prefer to be cared for at home, surrounded by familiar things and the people they love.
Every situation is different. This article offers some general points that families often find helpful, alongside the guidance of the person’s GP and healthcare team.
Talking about wishes
Gentle conversations about what matters most can help everyone feel more prepared. That might include where someone would like to be cared for, who they would like with them, and what would make them feel comfortable and at peace. These conversations can happen gradually, and it’s fine to come back to them over time.
Healthcare professionals can explain the more formal ways of recording wishes about care and treatment, and help make sure the right people are aware of them.
Who is usually involved
When someone is cared for at home towards the end of life, several people may be involved: the GP, community or district nurses, local hospice teams and palliative care specialists, alongside family and friends. Getting to know who is involved, and how to contact them, can bring reassurance to everyone.
Making the home comfortable
Small changes can make a big difference to comfort, such as moving a bed to a room with a view of the garden, keeping favourite photographs and music close by, and making sure the room is calm and peaceful. The healthcare team can advise if any equipment would help.
Support for the family
Caring for someone at the end of life can be emotionally and physically demanding. It’s important that family members can rest, and that they have time simply to be with their loved one, rather than spending every moment on practical tasks. Local hospices and charities often offer support for families too, including after a bereavement.
How live-in care can help
A live-in care companion can provide compassionate, practical and emotional support day and night, working alongside the nurses and hospice teams who provide clinical care. Having someone there through the night can bring great comfort, and gives family members the chance to rest and to spend meaningful time together.
Above all, there is always a familiar, reassuring presence close by, helping the person remain at home for as long as they wish, where possible.
If you’d like to talk about end-of-life care at home, we’re here to listen, at whatever pace feels right for you.